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The governance principles of the Observatories are already starting to take shape

10th February 2021/in news /by h2o

The foundation work for establishing the national and European observatories is well under way.  The principles behind the governance of these new bodies have been written and agreed by the H2O Steering Committee at the end of January. These nine principles, together with the legal groundwork and the description of data flows and consents, form part of the first formal deliverable from the project that is currently being drafted: the “business architecture” of H2O.

In the first three countries – Austria, the Netherlands and Germany – workshops have already been held to kick off the discussions on how the new, not for profit, independent observatories are set up.  With these guiding principles, the work to set up these new organisations will be aligned across countries, and H2O will be able to build on this foundation to extend to more countries and more disease areas in the future.

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ACKNOWLEDGEMENT

This project has received funding from the Innovative Medicines Initiative 2 Joint Undertaking under grant agreement No 945345-2. This Joint Undertaking receives support from the European Union’s Horizon 2020 research and innovation programme and EFPIA and Trial Nation and JDRF.

About IMI

The Innovative Medicines Initiative is a partnership between the European Union and the European pharmaceutical industry, represented by the European Federation of Pharmaceutical Industries and Associations (EFPIA). It is working to improve health by speeding up the development of the next generation of medicines, particularly in areas where there is an unmet medical or social need. It works by facilitating collaboration between the key players involved in health research, including universities, research centres, the pharmaceutical and other industries, small and medium-sized enterprises (SMEs), patient organisations, and medicines regulators. IMI is the world’s biggest public-private partnership (PPP) in the life sciences. http://www.imi.europa.eu/

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National activities pave the way for the first Observatories H2O gets ready to embrace patients’ views through the Advisory Boards
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