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H2O gets ready to embrace patients’ views through the Advisory Boards

25th February 2021/in news /by h2o

The Health Outcomes Observatory (H2O) project kicked off on 1 October 2020 with the aim to equip patients with the tools to measure their outcomes in a standardised way, whilst giving them full control of their data. This is the first-ever attempt at scale to collect and incorporate patient outcomes into healthcare decision making at an individual and population level.

And it has significant value for patients. Often, the way diseases are measured is largely based on input from clinicians; because of this, the measurements don’t necessarily include experiences from the patient and the impact of a disease on their life. By creating a framework that incorporates and amplifies the patient voice, H2O hopes to improve the dialogue between patients and doctors, so that patients receive better care, healthcare professionals have better access to data to inform clinical decisions, and ultimately, improve the quality and sustainability of care based on outcomes that truly matter to patients.

To achieve this, the European Patients’ Forum, a consortium partner of H2O, will contribute with a strong patient perspective by establishing and coordinating three project patient advisory boards. The patient boards will be made up of patients and patient representatives that consult and advise on the work of the project. H2O has Patient Advisory Boards to engage with patients from the start of the project, to provide a patient perspective and to identify mechanisms for meaningful patient involvement and input throughout the project – a key to the success and shift in paradigm.

Stay tuned for further updates as the Patient Advisory Boards take shape! You can learn more about the relevance of H2O for patients here.

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https://health-outcomes-observatory.eu/wp-content/uploads/2021/02/patients.png 600 900 h2o https://health-outcomes-observatory.eu/wp-content/uploads/2021/01/H2O-logo-hor-300x98.png h2o2021-02-25 18:41:582021-03-23 14:53:32H2O gets ready to embrace patients’ views through the Advisory Boards

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ACKNOWLEDGEMENT

This project has received funding from the Innovative Medicines Initiative 2 Joint Undertaking under grant agreement No 945345-2. This Joint Undertaking receives support from the European Union’s Horizon 2020 research and innovation programme and EFPIA and Trial Nation and JDRF.

About IMI

The Innovative Medicines Initiative is a partnership between the European Union and the European pharmaceutical industry, represented by the European Federation of Pharmaceutical Industries and Associations (EFPIA). It is working to improve health by speeding up the development of the next generation of medicines, particularly in areas where there is an unmet medical or social need. It works by facilitating collaboration between the key players involved in health research, including universities, research centres, the pharmaceutical and other industries, small and medium-sized enterprises (SMEs), patient organisations, and medicines regulators. IMI is the world’s biggest public-private partnership (PPP) in the life sciences. http://www.imi.europa.eu/

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The governance principles of the Observatories are already starting to take... H2O fosters debate on value-based, outcome driven healthcare in DIA Europe ...
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