Evelyn Groß has been living with Crohn’s disease for over 30 years and is the president of ÖMCCV, the Austrian Crohn’s Colitis Association. She is also actively contributing to Work Package 4 (IBD), which is currently compiling relevant patient-reported and clinical outcomes in preparation to construct a core outcomes set for IBD using the Delphi method.
So, why did Evelyn get involved with H2O? As someone living with a chronic disease, she is “missing an integrated view of [her] own health information, of [her] patient-reported outcomes.” Not only that, but she wants her PROs “to have an impact on care decisions” and to be “used for wider analysis.”
Watch her video to hear all her reasons.