• Catalan
  • Dutch
  • English
  • German
  • Spanish
Health Outcomes Observatory
  • Home
  • Project
    • About H2O
    • Vision & Objectives
    • Impact
    • Work Packages
    • Governance
  • Participants
    • Partners
    • Associated Collaborators
    • Advisory Boards
  • Observatories
    • What are the Observatories?
    • How do they work?
  • Patients
    • H2O, with and for patients
    • FAQs
    • PROs Leaflet
  • News
    • News
    • Press Releases & Announcements
    • Events
    • Blogs
  • Resources
    • Publications
    • Deliverables
    • Factsheets
  • Contact
  • Search
  • Menu Menu
  • Home
  • Project
    • About H2O
    • Vision & Objectives
    • Impact
    • Work Packages
    • Governance
  • Participants
    • Partners
    • Associated Collaborators
    • Advisory Boards
  • Observatories
    • What are the Observatories?
    • How do they work?
  • Patients
    • H2O, with and for patients
    • FAQs
    • PROs Leaflet
  • News
    • News
    • Press Releases & Announcements
    • Events
    • Blogs
  • Resources
    • Publications
    • Deliverables
    • Factsheets
  • Contact

Making the case for Delphi: a robust approach to consensus

8th October 2021/in news /by h2o

By Professor Tanja Stamm, Co-Lead for H2O and Head of Section for Outcomes Research Center for Medical Statistics, Informatics, and Intelligent Systems Medical University of Vienna

The Health Outcomes Observatory (H2O), an IMI funded initiative launched in October 2020, is the first ever unified attempt to collect and incorporate patient-reported outcomes into health care decision-making at individual and population levels across multiple locations in Europe.

Why we selected the Delphi Exercise

We are the first PPP consortium, indeed, the first group anywhere to attempt to make it possible for everyone to share a common language around PROs at this scale.

Because this has never been done in this way, or at this scale before, we are undertaking a comprehensive consensus exercise using a Delphi process. This is a recognised methodology for reaching consensus within diverse groups, and will help us identify practical and patient-friendly solutions to enable patients to record and report outcomes and side effects with minimum effort.

We are the first PPP consortium, indeed, the first group anywhere to attempt to make it possible for everyone to share a common language around PROs at this scale.

The Delphi exercise begins by asking participants to openly nominate and rate the importance of various outcome variables for selected disease groups. This input is collected, aggregated, and redistributed across all Delphi participants, who can compare their original individual answers to that of the whole group. The Delphi participants are then asked to identify and rate important outcomes again but within this newly informed context. This process is repeated, promoting the evolving investigation into and refinement of the core outcomes to be selected.

What do we hope to achieve?

Our objective is simple. We want to give patients the tools to measure their outcomes (e.g. how they feel, how they experience symptoms etc.) in a standardised way. However, different measurements exist, and we thus need to agree on a set of standardized outcomes.

By using these standardized outcomes sets, clinicians and patients will speak the same ‘language’. We believe this will strengthen the voice of patients, keeping them at the heart of Value Based Health Care in Europe and beyond.

We believe this will strengthen the voice of patients, keeping them at the heart of Value Based Health Care in Europe and beyond.

We also believe H2O will go on to;

  • improve access to the data informing and enhancing clinical decisions
  • provide real world evidence showing the status and dynamics of patient populations
  • improve quality and sustainability of care through better and more transparent evidence of patient measures and outcomes
  • support the design and direction of new treatment development.

We encourage you to join us!

If you are a patient, clinician, academic or health authority member with up-to-date experience within Inflammatory Bowel Disease, Diabetes, Lung or Breast cancer and are interested in participating in the Delphi process, please email us at info@imi-h2o.eu.

We will follow up with joining instructions and answer any questions you may have.

Tags: Delphi
Share this entry
  • Share on Twitter
  • Share on LinkedIn
  • Share by Mail
https://health-outcomes-observatory.eu/wp-content/uploads/2021/10/Making-the-case-for-Delphi-a-robust-approach-to-consensus-4.jpg 600 859 h2o https://health-outcomes-observatory.eu/wp-content/uploads/2021/01/H2O-logo-hor-300x98.png h2o2021-10-08 18:51:122021-10-08 19:08:46Making the case for Delphi: a robust approach to consensus

NEWSLETTER

Sign up to stay informed

Recent Posts

  • Joint statement from H2O and ICHOM announcing a new collaboration agreement
  • Creation of the independent legal entity of the H20 (Health Outcomes Observatory) project in Spain.
  • H2O response to the new European Health Data Space (EHDS)
  • Unleashing the Power of PROS – an H2O Hosted Conversation

ACKNOWLEDGEMENT

This project has received funding from the Innovative Medicines Initiative 2 Joint Undertaking under grant agreement No 945345-2. This Joint Undertaking receives support from the European Union’s Horizon 2020 research and innovation programme and EFPIA and Trial Nation and JDRF.

About IMI

The Innovative Medicines Initiative is a partnership between the European Union and the European pharmaceutical industry, represented by the European Federation of Pharmaceutical Industries and Associations (EFPIA). It is working to improve health by speeding up the development of the next generation of medicines, particularly in areas where there is an unmet medical or social need. It works by facilitating collaboration between the key players involved in health research, including universities, research centres, the pharmaceutical and other industries, small and medium-sized enterprises (SMEs), patient organisations, and medicines regulators. IMI is the world’s biggest public-private partnership (PPP) in the life sciences. http://www.imi.europa.eu/

Legal notice
Privacy Policy
Cookies Policy

       




Driving a brighter future in healthcare through patient-reported outcomes (PROs):... H2O celebrates its 3rd GAM to share project progress
Scroll to top
Non exempt cookies, proprietary cookies and third-party cookies are used to identify the browsing preferences and habits of users and to offer a better experience. Please consult our cookie policy here.
Cookie SettingsAccept all Reject All
Manage consent

Privacy Overview

This website uses cookies to improve your experience while you navigate through the website. Out of these, the cookies that are categorized as necessary are stored on your browser as they are essential for the working of basic functionalities of the website. We also use third-party cookies that help us analyze and understand how you use this website. These cookies will be stored in your browser only with your consent. You also have the option to opt-out of these cookies. But opting out of some of these cookies may affect your browsing experience.
Necessary
Always Enabled
Necessary cookies are absolutely essential for the website to function properly. These cookies ensure basic functionalities and security features of the website, anonymously.
CookieDurationDescription
cookielawinfo-checkbox-analytics11 monthsThis cookie is set by GDPR Cookie Consent plugin. The cookie is used to store the user consent for the cookies in the category "Analytics".
cookielawinfo-checkbox-functional11 monthsThe cookie is set by GDPR cookie consent to record the user consent for the cookies in the category "Functional".
cookielawinfo-checkbox-necessary11 monthsThis cookie is set by GDPR Cookie Consent plugin. The cookies is used to store the user consent for the cookies in the category "Necessary".
cookielawinfo-checkbox-others11 monthsThis cookie is set by GDPR Cookie Consent plugin. The cookie is used to store the user consent for the cookies in the category "Other.
cookielawinfo-checkbox-performance11 monthsThis cookie is set by GDPR Cookie Consent plugin. The cookie is used to store the user consent for the cookies in the category "Performance".
viewed_cookie_policy11 monthsThe cookie is set by the GDPR Cookie Consent plugin and is used to store whether or not user has consented to the use of cookies. It does not store any personal data.
Functional
Functional cookies help to perform certain functionalities like sharing the content of the website on social media platforms, collect feedbacks, and other third-party features.
Performance
Performance cookies are used to understand and analyze the key performance indexes of the website which helps in delivering a better user experience for the visitors.
Analytics
Analytical cookies are used to understand how visitors interact with the website. These cookies help provide information on metrics the number of visitors, bounce rate, traffic source, etc.
Advertisement
Advertisement cookies are used to provide visitors with relevant ads and marketing campaigns. These cookies track visitors across websites and collect information to provide customized ads.
Others
Other uncategorized cookies are those that are being analyzed and have not been classified into a category as yet.
SAVE & ACCEPT