H2O response to the new European Health Data Space (EHDS)
H2O welcomes this exciting step forward. We believe health data should be seen as an essential resource for the benefit of patients, science and the healthcare system. But data is also a precious resource, to be handled with respect and care. H2O is a public private partnership building the network of trust needed to bring the Health Data Space to life. We are an IMI initiative, complimenting the work of ICHOM, EHDEN and Data Saves Lives, to name a few.
In our focus on patient-reported outcomes (PROs), we are working to strengthen the patient voice in healthcare. Standardising the collection of PROs and incorporating patients’ experiences and preferences into the conversation will open new possibilities and benefit patients, providers, science and society alike.
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