H2O responds: European Health Union press release - A European Health Data Space for people and science

H2O response to the new European Health Data Space (EHDS)

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H2O welcomes this exciting step forward. We believe health data should be seen as an essential resource for the benefit of patients, science and the healthcare system. But data is also a precious resource, to be handled with respect and care. H2O is a public private partnership building the network of trust needed to bring the Health Data Space to life. We are an IMI initiative, complimenting the work of ICHOM, EHDEN and Data Saves Lives, to name a few.

In our focus on patient-reported outcomes (PROs), we are working to strengthen the patient voice in healthcare. Standardising the collection of PROs and incorporating patients’ experiences and preferences into the conversation will open new possibilities and benefit patients, providers, science and society alike.

EHDS Press Release

 

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ACKNOWLEDGEMENT

This project has received funding from the Innovative Medicines Initiative 2 Joint Undertaking under grant agreement No 945345-2. This Joint Undertaking receives support from the European Union’s Horizon 2020 research and innovation programme and EFPIA and Trial Nation and JDRF.

About IMI

The Innovative Medicines Initiative is a partnership between the European Union and the European pharmaceutical industry, represented by the European Federation of Pharmaceutical Industries and Associations (EFPIA). It is working to improve health by speeding up the development of the next generation of medicines, particularly in areas where there is an unmet medical or social need. It works by facilitating collaboration between the key players involved in health research, including universities, research centres, the pharmaceutical and other industries, small and medium-sized enterprises (SMEs), patient organisations, and medicines regulators. IMI is the world’s biggest public-private partnership (PPP) in the life sciences. http://www.imi.europa.eu/

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