We are proud to report that our first set of outcomes has been accredited and is publicly available.
Our Set of Core Outcome Measures for Metastatic Breast Cancer has achieved accreditation by The International Consortium of Health Outcomes Measurement (ICHOM). This required an intensive review process by ICHOM to ensure that the set meets their rigorous standards for outcomes measurement and the harmonization of key measures used across all of the ICHOM sets.
Welcoming this news, Fatima Cardoso, collaborator in the H2O working group and founder and President of the Advanced Breast Cancer (ABC) Global Alliance and of the ABC International Consensus Guidelines Conference, said;
“The outcome set includes aspects of health-related quality of life that are specifically important for women who live with metastatic breast cancer. That is, the opinion of almost fifty patients and patient representatives were consulted and included in the final deliberation of outcomes.
Implementation of this core outcome set in research and daily clinical practice will lead to breast cancer care of higher quality and more aligned with the needs and preferences of this often neglected patient population.”
H2O is grateful to all the patients and patient representatives who contributed to this work.
The set was developed by an international, multidisciplinary working group of public and private members of the H2O Consortium, with special mention to Kelly de Ligt, Belle de Rooij, Elham Hedayati, Maria Karsten, Veerle Smaardijk, Mirjam Velting, Christobel Saunders, Luzia Travado, Fatima Cardoso, Escarlata Lopez, Nick Carney, Yvonne Wengström, Angela Ives, Galina Velikova, Luz Sousa Fialho, Yuki Seidler, Tanja Stamm, Linetta Koppert and Lonneke van de Poll-Franse.
This work is the result of the recent collaboration between H2O and ICHOM.
The finalized set materials are available for download from ICHOM Connect and can be found here.