How do they work?

The primary aim of H2O is to provide patients and their health care providers with information for use in individual clinical care:

  • Each individual patient will see a personalised dashboard with information on their disease progression, treatment, and outcomes and how this compares with other patients’ experience through anonymised, aggregated data to ensure patients’ privacy rights are protected at all times.

  • The personalised information will allow each patient to have better discussions with their health care providers and to better manage their own condition

  • Each individual patient will be able to compare his or her well-being with aggregated data from similar patients with the aim of equipping him or her to better manage their care and, therefore, their outcomes.

  • With the patient’s consent, the relevant health care professional(s) will also receive the information, allowing for regular and up to date tracking.

The second major aim of H2O is to make the information available in order that patient-reported data is at the heart of broader healthcare decision making:

  • H2O will enable health authorities to compare different patient pathways and select the most efficient ones, optimising patient outcomes and costs.

  • Researchers will be able to conduct studies based on real world evidence to inform future interventions.

  • National and international patient organisations will be able to use aggregated information as evidence in providing guidance and advocacy.

  • Industry will be able to conduct analyses to inform drug development activities and generate evidence for submission to health authorities

  • This new source of information will facilitate benchmarking and will add an extra dimension for HTA bodies in their assessments of the value of health care. This, in turn, will permit continual adjustments to healthcare approaches, making continuous value-based healthcare improvements a reality.